My RA Made Me Do It
有10个关于ra的很好的事情。
I like to说与类风湿性关节炎（RA）一起生活是玫瑰的舞蹈 - 有很多荆棘。当你受伤和疲惫不堪时，真的很难看到任何东西，而是那些使生活如此艰难的尖峰。但是，你知道培养乐观情感可以提高你的痛苦和慢性疾病吗？经过一辈子的努力解决这种情况，我发现专注于我拥有的东西和我的东西cando makes me a much happier person than when I was very aware of what I didn’t have andcouldn’t做。所以让我们采取舌头脸颊，通过从不同的角度看着它们来剥离一些荆棘。
你可以没有100％无罪的人
Naps are blissful, naps are restorative, and when you live with RA, naps can be an essential part of self-care. People with RA have a higher need for sleep than the general population, sometimes as much as 10 hours in a 24-hour period. Your doctor may even recommend that you rest. However, they generally don’t recommend how to deal with the judgement of other people, who tend to feel that naps are an indulgence.
Some clever rebranding can help others understand that, for you, a nap is a necessity. I call my daily nap a “mandatory rest period” and tell people that without this rest, my fatigue and pain levels will go out of control. Guess what? Because I respect my need for a nap, so do other people (mostly).
你知道如何用它滚动
释放约翰列侬，RA.当你忙于做其他计划时会发生什么。无论是完成截止日期，支付账单，还是参加你最好的朋友的婚礼，以某种方式发现了一种完全何时最适合的方式，......罢工！让你绕过瓦砾，试图修复时间灵，信用评级，并在照顾自己和在那里为你所爱的人做出不可能的选择。
The longer you have RA, the better you learn that it ebbs and flows and that you are not entirely in charge of your commitments. So you make contingency plans, create longer deadlines, and try to teach your peeps about flexibility. Learning to adapt and have a plan B will help you keep ticking along with less interruption into your life.
You Can Have a Meteorology Side Hustle
Changes in the weather are notorious for their flaring effect on RA and other types of arthritis. That means you’ll have a good heads up on impending storms and downpours. It can be incredibly frustrating to be sideswiped by something as uncontrollable as a day of rain or a rapid switch in temperature. Aside from watching your weather app and being ready to implement a variety of pain-management techniques, there’s very little you can do about this. But it does teach you how to deal with frustration, gives you a good reason to become more flexible, and bridges the intergenerational gap with your Great Aunt Bertie whose osteoarthritis is just as reliable a meteorologist as your RA.
你更容易宽容
Living with RA makes you as diplomatic as an ambassador. Instead of snarling at the 497th person who compares their occasional knee pain to your autoimmune disease, you take a deep breath and educate them on thedifference between RA and osteoarthritis, thus preventing familial and international incidents.
RA教导宽容，耐心和同理心对待其他人面临的战斗。由于我们的病情越来越看不见，由于更好的治疗，我们的个人和深刻地理解你无法判断一个人的健康，并通过他们的样子来挣扎。
你可以跳过不受欢迎的社交活动
你害怕去一个家庭或工作活动。它不会很有趣，会有戏剧，或者你对小话说真的很糟糕（提升手）。与可能被邀请的人不同，你有一个内在的理由送你的遗憾。而不是一个社会痛苦的晚上，你可以蜷缩在沙发上，看电影用一碗冰淇淋。有了一点运气，你的ra - 你不想做的任何东西的辉煌借口 - 将跳过你自己的独奏庆祝活动。
You’re a Catch
You因为你的药物而不能喝酒和需要离开耳朵ly to get home and go to bed. This makes you the perfect date for an elderly, frail billionaire who might want to mention you in their will.
但是，严肃地说，可能让你感觉像“损坏的商品”那样非常好，这可能是一个非问题甚至在加方面的某些东西。当我单身时，我认为我每天的午睡都需要任何合作伙伴的巨大问题。然后我找到了一个认为这是有史以来最好的事情的人。
你会在白色外套上新朋友
寻找一位好医生就像约会一样 - 你必须在找到王子之前吻了很多青蛙。“点击”是重要的，但即使它不是一见钟情，也可以随着时间的推移发展，从而从你们两个人那里努力。ra意味着在医疗保健环境中花费很多时间，找到一个伙伴（或合作伙伴）是非常重要的，伙伴（或合作伙伴），如果有必要，谁将为您而战。关键是您都开始尊重，相互考虑，以及开放通信的承诺。如果你有的话，你可以创造数十年的长期关系，有时比大多数浪漫的关系！
你现在是一个专业的健康倡导者
慢性疾病可以让你觉得你没有对你的关系做出很大贡献，几乎和身体上讲（我确信你做，但这是另一栏的主题）。但是，ra意味着你很快开始了解如何浏览医疗保健系统并为自己倡导。并猜猜是什么 - 这些是可转让的技能。如果你爱的人生病了，这就是你擅长的地方。因为你的装备比其他人都能更好地帮助他们。
你有很棒的表演技巧
It’s the rare person with RA who answers completely honestly when asked how they are doing. You quickly learn that people don’t know how to deal with the realities of RA. And sometimes, going into denial mode may just be your preferred coping skill for the day. Whatever the reason, you have developed Oscar-worthy skills that help you look and function as if your pain levels aren’t at a level 8. Meryl Streep has to retire at some point — then it’s your turn to shine!
你知道对你最重要的事情
Low energy and fatigue是ra的主要症状，通常是最令人沮丧的症状。我们都有那个臭名昭着的清单，就像阵容的剑一样，你的ra嘲笑它。最终你学会花费你真正重要的宝贵能量。你的孩子不会记得你是否有灰尘兔子的大小，他们想要做的只是花时间和你在一起。专注于爱情，营造一个幸福的家（即使是凌乱的话）。
