问回流妈妈：自闭症和GERD治疗挑战
Dear Reflux Mom,
我拼命寻求对12岁的儿子自闭症的帮助。当他变得非常令人不安，尖叫和有严重的发脾气，自伤行为和无尽的不眠之夜，我的儿子平静而安静。我们向他带来了许多医生，包括最近访问国家儿童医院的访问，了解为什么他的行为发生了变化，如果与医疗问题有关。
After many tests and clinic visits, it was concluded that everything was normal and the doctors tied the behavior to his autism and puberty.
I am still concerned that reflux is affecting his behavior. The GI doctor said the endoscopy showed slight inflammation of his esophagus and we should give him Tums. I feel like his symptoms were disregarded as if it's not a big deal or blamed on his label again.
Anyway, my son is really suffering daily due to his behavior. He is also refusing to eat and losing weight. I'm so worried because I think it's a major reflux issue that he's going through.
He's not sleeping at all, screaming all night, injuring himself and pacing around the house all day. I cannot send him to school since he can't even learn at this point.
I'm currently trying to avoid all the food that may be problematic for the reflux issue, and just started giving him Tums for children.
I'm waiting for some relief with his symptoms and behavior.
我很抱歉这很长的票据，但我想问你是否有什么你建议我可以做的帮助
him get out of this misery immediately, other than the foods and Tums?
我非常感谢你的帮助。
我们很担心，如果他继续这样的方式，他可能会很快进入呃......睡觉2小时，伤害自己，不要吃喝。
Please help!
From: Worried Mum
Hello Worried Mum,
Oh big huge hugs to you and your son. What a terrible situation. You must be so worried. It is possible to get your son the help that he needs but it takes extra work when a child has autism, affecting his sensory system and his ability to communicate.
A while ago, I went to a very interesting and informative meeting on ASD (autism spectrum disorders) and GI disorders. There was a great deal of discussion on the under- diagnosis and under-treatment of gastrointestinal disorders in this group. Often, if a child is having behavioral problems, it is assumed that it is due to autism, not to an illness.
Certainly it is worrisome that your son has mild esophagitis. Many children with mild esophagitis would have a minor tummy upset or heartburn. However, if your sensory system is wired differently due to autism; mild esophagitis may go unnoticed in one child with autism or feel like the worst pain imaginable in another. That is because some children with autism have a sensory system that is sluggish and unresponsive and others have a sensory system that is in hyper-responsive. Perhaps your son has a painful medical condition (esophagitis) combined with a hyper-responsive sensory system so his perception of the pain is much higher.
I wonder if your pediatrician is in a position to coordinate care and help with referrals or treatment recommendations. Maybe the pediatrician would be willing to try a short term trial of reflux medication to see if there is an improvement in his symptoms. You could also get a referral to another gastroenterologist with experience working with children with ASD for further evaluation. The pediatrician may also help you figure out if there is another illness or condition that is causing so much discomfort.
来自回流妈妈
Dear Reflux Mom,
Thank you so much for writing back. We saw deveral DAN doctors (Defeat Autism Doctors) in the past and they had found yeast overgrowth and parasites.
我的儿子对这些进行了治疗，但我们从未在功能上或其他地区看到任何改善。我很快就会再次测试他
对于可能的酵母过度生长，细菌和牛肝菌与丹医生。
They're the only ones who understand most of the issues our kids have.
For now I'll continue to
give him probiotics and the pediatrician
just started Zantac today. The pediatrician also suggested putting him on Respideral to calm down the self injury and sleeplessness temporarily.
它似乎有助于自我伤害。
He's also a
bit calmer than the past week. My son has some of the symptoms of GERD listed on the website so I hope to get a clarification
from another GI doctor soon.
Thank you so much for the information.
From: Worried Mum
