Building Your Psoriatic Arthritis 'Dream Team'
没有一个standard path to receiving a psoriatic arthritis diagnosis. Perhaps the diagnosis came from your dermatologist who’s been treating your psoriasis for years. Our maybe it came from a rheumatologist referral after having significant joint pain.
无论哪个路径，向前移动都可能很困难。您踏上谁来帮助您协调您的护理？谁在疾病管理方面是您的主要资源？许多问题可能会在你的大脑中循环。
从小学开始，我总是有一个始终如一的骨科外科医生。似乎每年我有一些膝盖痛苦。牙套，拐杖，物理治疗 - 他们只是我常规成长的一部分。在一定点，我被称为风湿病学家，因为我的骨科医生不确定与我有什么关系。两位不同的风湿病学家和几个测试后，怀疑我有银屑病关节炎。我从未给过官方诊断，因为我正在经历青春期，医生不想用药物治疗我。
As my school years went on, I saw specialists for migraines, stomach problems, sinus issues, vocal nodes — you name the specialty, I probably saw someone in the field.
一旦我在2012年正式诊断出与银屑病关节炎，疯狂开始了。医生医生，预约后约会。它开始变得压倒。我会表面呈现出一种新的症状，并提到一名新医生。
谁应该帮助我协调我的所有护理？毕竟，在一天结束时，我的所有症状都回到了潜在的问题 - 银屑病关节炎。
During this crazy period, I read the book Mind Over Medicine by Lissa Rankin, M.D. This book truly changed my life, as it made me realize I needed to be the driver of my health. In the book, Dr. Rankin talks about curating your team of health care professionals by getting doctors and other practitioners on your side, to work in tandem to coordinate your care.
I started looking at the different aspects of my condition and knew I’d need several practitioners to help me. Of course I had my rheumatologist and dermatologist, but there were other issues to be addressed as well. I wanted to take a holistic approach to my healing — meaning I wanted to look at my body as a whole and promote healing from within.
As I became empowered, I began unknowingly interviewing my doctors. I would take articles from other patients and gauge their reactions, spewing facts and information I unearthed from my own research.
Was the doctor willing to work with me? Did they dismiss me right off the bat, or did they have an open mind? Were they willing to support me through dietary changes and other lifestyle changes, or did they see them as unnecessary and silly?
Running through the list of my doctors, I kept around the ones who truly saw me as a partner in my health. And the others? Well, they got the boot!What type of doctors were I seeing at the time? Get ready for this mega list…
风湿病学者
疼痛管理
精神科医生
Psychologist
Acupuncturist
Orthopedist
皮肤科医生
Gastroenterologist
脊椎按摩师
Blood disorder doctor
功能药物
物理治疗师
职业治疗师
健康教练
通过所有的这些医疗professio骑自行车nals, and their nurses and physician’s assistants, was hard work! Not to mention overwhelming. I barely had the energy to make it to my appointments, let alone to coordinate my care between all of these doctors. I found it extremely important to take good notes and make sure to update my doctors on what the others were telling me to do.
一段时间，我确实去了所有这些个人寻求帮助。但是，正如我学会了如何管理我的症状，我终止了约会。我的健康教练帮助我看到了饮食权的重要性，我的精神科医生和心理学家帮助我实施了诉讼，让我有助于平衡我的紧张系统，而我的痛苦管理医生提供了缓解，直到我在控制下痛苦。
在寻求帮助方面没有弱点。通过在某些领域的顶级思想领袖拉动，您可以策划一个有助于让您退回脚的团队！
如今，我不始终如一地去所有这些专业人士。我的风湿病学家，皮肤科医生，针灸师，脊椎治疗师和职业治疗师是我的主要GO-TO。但是，现在与他们一起工作，我知道当出现情况时，我知道我的背袋里的其余部分。我真的觉得我曾经照顾自己的医疗保健梦队。
想要建立自己的医疗保健梦队吗？这里有四个提示让你到自己！
1。选择一个相信你可以治愈的医疗保健从业者。拥有一个卫生保健提供者，他们相信让你更好的力量是宝贵的。心理健康在治疗中有巨大的影响，所以在你的团队中选择拿起你的人！让它成为一个不仅相信你的人，而且还相信你可以在一起恢复生活你所爱的生活。
2。Ensure that your practitioner realizes that it’s a partnership, not a dictatorship.你和你的从业者之间的治疗关系是一个共同努力，您必须选择实现这一事实重要性的团队成员。egos opon，你的医生必须愿意倾听你并相应地修改治疗方法。你必须是这种治疗之旅的共同飞行员。
3.。Make sure the health care practitioner is a team player and looks at your health in a holistic view.如果大坝泄漏，则会下游会有后游。你的身体也是如此。如果有一件事是关闭的，你可以确定它正在影响别的东西。不要解决你的整个身体（真的你的一生）是一个严重的错误。为了让我们的身体走向愈合，我们必须采取全面的观点。这意味着您的医疗保健从业者必须愿意与您的团队中的其他玩家合作 - 或者至少是与他们的治疗课程开放，并愿意在必要时修改其他治疗方法。
4.。Commit to being the gatekeeper between all of your dream team members.To think that your teammates will be communicating all the time isn’t realistic. With the rising pressures of health care, and with disjointed electronic health record systems, you must make sure to accurately communicate what is going on between all of your teammates.For me, I keep my own health record. At each appointment I write down notes, get copies of labs and tests, and keep a running list of my current treatments/medications. Then, when I go in to see my practitioner(s), I make sure to update them on how I’m managing, what I’m currently doing, and what my other doctors have said. A great tip is to bring a friend or family member with you. They can help you take notes and recap what happened during appointments. When I’m not feeling well, I ask my mom or dad to come with me to my appointments. Sometimes someone else picks up on something you may not have heard!A commitment to being your health’s gatekeeper is a commitment to ensuring the highest level of care you can receive. Ensuring there is fluid communication between all of your teammates will only work to your advantage and get your psoriatic arthritis under control!
