This is Me - An Interview With Psoriatic Disease Patient Advocate Lori-Ann Holbrook

by朱莉·克罗尼布克尼克 Patient Advocate

It may soundcrazy, but I’m so thankful for my银屑病疾病.

Why you may ask? Well, because of my experiences and advocacy work, it has brought some of the most inspiring and caring people into my life.

One of these people isLori-Ann Holbrook.

Lori-Ann是我的皮斯人 - 我的银屑病姐妹。她是我转向建议的人,当我需要谈话时。我们笑了,我们哭了,我们已经骑了银屑病疾病roller coastertogether for the past several years. Lori-Ann was even one of my health coaching clients a few years back. I absolutely loved our bi-weekly calls and working together to get her on the right track with her diet.

Movies have always been one of Lori-Ann’s favorite pastimes. So, when HealthCentral asked me to interview my psoriatic arthritic friend, I knew I wanted to take a movie angle!

The following is an interview between myself and Lori-Ann Holbrook, a psoriasis and psoriatic arthritis patient. I invite you to read our interview and then imagine what your story would look like as a movie. What type of movie are you living in? What would viewers take away?

Remember, you have the power to rewrite the ending of your story. So if you don’t like the way your plot is moving, empower yourself with the tools to get your condition on track!

HealthCentral (HC): Give us the highlight reel of Lori-Ann's psoriatic disease movie trailer.

Lori-Ann Holbrook:My highlight reel shows me moving back to the Northeast and working in Manhattan. And all at once: being unable to straighten my right leg, developing lesions on the tops and soles of my feet and shuffling around like my 70-year-old mother at the age of 45. Cut to my genius primary care physician (pretty blonde newlywed) taking me seriously and thinking all my symptoms were of one problem. Cut to my diagnosis and finding the National Psoriasis Foundation’s Walk to Cure Psoriasis in the New York Botanical Gardens.

Cut to meeting other patients at a pharma-sponsored Blogger Summit and meeting Joni Katzantzis, who blogs about her psoriasis. Cut to me hunting down a blog about psoriatic arthritis for me and not finding much. Cut to a giant lightbulb and me giving birth toCity Girl Flare, writing for The Mighty, Everyday Health, and several unbranded websites, as well as being asked to partner with drug companies eager to know what it is like to live with my condition.

Cut to my being sought after to participate in the first HealtheVoices conference where I met my idols with all sorts of chronic conditions and being part of a unique tribe of people who understand like no one can. It is no secret that you are my favorite, Julie!

HC: Every good movie has a turning point. What was the catalyst for your taking control of your health and becoming a proactive and empowered patient?

Holbrook:我已经准备好了更改我需要的东西,以便感觉更好。我非常兴奋地告诉我的第一个风湿病学,我正在吃抗炎饮食并在健身房使用椭圆形。进一步阅读关于治疗我的整个身体的条件,找到一个恒星整体健康教练(也是你,朱莉)激动我。如果我的旅程中有催化剂,那是我决定开始我的博客,City Girl Flare, so other patients would not have to feel alone.

HC: Walk us through the scene of you publishing your first post about your health out into the world? Why did you start and what did you hope to achieve by starting your online advocacy efforts?

Holbrook:我的年代tarted my blog,City Girl Flare,因为我希望从像我这样的人那里读一个人,对银屑病关节炎有兴趣,我对我的同样的事情感兴趣,我可以联系。谢天谢地,我没有发现你的博客,朱莉,因为这是我想要的一切。如果它不是为了错过它而不是糟糕的一天,那就没有糟糕的生活,我可能永远不会出生。我的第一篇帖子恰好恰好与2012年走路来治疗纽约的牛皮癣。我很高兴自我介绍,告诉别人参与散步,伴随着严重的银屑病性关节炎,并分享了一些活动的照片。我希望像我这样的其他患者会发现它,并且在我与他们共同的旅程时感到不那么独自。

慧聪:快进几年,我们在一个新城市看到洛瑞安,克服了新的障碍,有一些新增的诊断。您的目标是否随着您的健康和宣传工作而变化?

Holbrook:Ha! All these changes have brought about a new, smarter, healthier Lori-Ann! I’ve been spending lots of time healing, growing, and getting better with each day in Dallas, Texas, which also means I’ve barely written any blog posts in two years! Self-care is serious business. My goals remain the same, to take my readers on my journey, and sometimes I have to take time to be ready to share. Well, that time is soon, and I will be posting more regularly. I can’t wait to fill everyone in on my new diagnoses and what it’s taken to manage them well.

慧聪:如果有人在看你的银屑病疾病之旅的电影,你最终希望他们拿走的东西是什么?学分正在滚动,你最喜欢的歌曲正在玩,你希望这个消息卡在他们的头上。

Holbrook:Love this! I think my readers are used to me finding the diamond in the haystack and living my journey with psoriatic arthritis in a positive way. At the end of the movie, I hope folks understand that living with psoriatic arthritis can still be meaningful, positive, and enjoyable. The song changes every time I think about this question, but today I’ll choose “This is Me” by Keala Settle and the cast of “The Greatest Showman.”

想要了解有关Lori-Ann和她的银屑病疾病旅程的更多信息吗?看看她与牛皮癣一起生活:我的故事并答一读一些文章Lori-Ann has authoredHealthCentral。

Meet Our Writer
朱莉·克罗尼布克尼克

Julie Cerrone Croner是一位经过认证的整体健康教练,患者Empower,瑜伽教练,自身免疫战士和屡获殊荣的博客,它只是一个糟糕的一天,而不是一个糟糕的生活。当她没有赋予慢性神奇的患者以慢性发挥最佳生活时,她可以被发现与席琳迪翁,烹饪,烹饪,尊重与健康有关的东西或享受匹兹堡的生活,与她的丈夫和女儿。