你应该了解结肠直肠手术并发症

经过杰基·齐默曼 Patient Advocate

当您准备结直肠外科时,感觉您的外科医生会给您带来一大吨信息。左右,风险和福利,优点和骗局。但是,无论他们扔多少信息,直到你活着,总会有一些你不会知道的东西。在这个4部分系列中,我希望在我自己的手术后告诉你一些我了解到的事情。这个系列并不意味着吓唬任何人,只能教育我希望我所知道的事情。

第2部分 - 长期并发症

Recovery from each of my four abdominal/intestinal surgeries was 6-8 weeks. After that time I could resume normal activity, I could run a half marathon, I could jump and lift milk jugs. I could do anything according to my surgeon because I was healed.

What they didn't tell me

I was given the impression that once I was cleared for normal activity that I was healed, and essentially that my body may go back to doing whatever it did before. Perhaps this was a silly assumption on my behalf, but my surgeon spent a lot of time telling me that my life would go back to normal or at least some sense of normality after I had completed the steps to myj-pouch.。从未向我解释过,这些手术将继续影响我的身体在余生中。

A weak core

我有四个开放的手术,我有Badass伤疤来证明它。在我的手术时意味着什么是我对腹腔镜手术感到恶心(再次,他们没有告诉我,直到我被转身为或者),我会更加努力地治愈那些切口。当然,我知道他们不仅通过我的皮肤切割而且还是我的肌肉,而是当时,我并没有意识到这四个手术的巨大影响。

我的医生从未向我解释过的是这种类型的垂直切口通过腹部核心切断,并且您的核心实际上是持有大多数躯干的责任。他们从未告诉过我弱核心会导致back problems从长远来看,骨骼和关节问题和大量疼痛。

许多成年人有弱核心,因为我们不起作用。AB锻炼不仅仅是一个漂亮的六包,但他们也有助于保持一切对齐。在您的核心支持肌腱中的肌肉,支持您支持您的骨骼。我从未意识到一个人如何影响另一个,直到我经历的痛苦是如此严重。我希望我的外科医生告诉我,我需要在手术后花更多的时间在我的核心上工作,如果我没有在我的脊柱上冒着强烈的疼痛和可能的无法弥补的伤害。这在我看来,这就像那些初步谈判的“手术风险”中应该列出的东西。

Misaligned joints and tendons

In early 2015, five years after my first open surgery, I was in physical therapy for pain in my lower back. A pain that I couldn’t explain but was so extreme it rivaled IBD pain. It wasn’t until talking to my physical therapist about my past surgeries that it was explained to me that my core was so weak that it couldn’t support my back, which meant that my back was over compensating and thus causing the pain. On top of that, it was causing my hips to fall out of place over and over and therefore causing my legs to misalign. This created a vicious circle of pain all over my body that I couldn’t explain.

经过三个月的物理治疗,我做了一些改进,但绝不是我做了一个神奇的康复。我的PT告诉我,我有一个人看到的最弱核心,因为一旦你的肌肉被削减,他们就不会像曾经一样强烈地形成。这意味着我永远不会有一个“正常”的核心,但我仍然可以拥有强大的核心。我现在花了很多时间在我的核心上工作,因为我经历了严重弱点的苛刻真相。

Scar tissue problems

许多患者在瘢痕组织手术后经历并发症,特别是在同一地区的多个手术后。瘢痕组织还会在身体中产生液体,有时可以导致需要排水的大口袋。这些液体的液体可能导致疼痛,压力和感染。狭窄,它基本上围绕肠道紧缩的瘢痕组织也可引起疼痛,堵塞,有时会导致更多的手术。疤痕组织和狭窄都可以用更多的手术治疗,但通常不是外科医生或患者的首选。

Steroidal complications

之前,之后,在手术过程中许多炎症性肠病病人take high dose steroids to help keep their disease under control. Steroids—which, in my opinion are over prescribed—can have devastating long term effects on the body. If you’ve been on high dose steroids for any length of time, I’d recommend a bone density scan to make sure the integrity of your bones has stayed intact. Weak bones and joints can be a long term complication of extended steroid use.

面对生命或死亡手术时,上述并发症都不应该足以让您重新考虑手术。当人们问我关于手术时,我总是说我为一个非常庞大,更易于易于问题的问题交易了一系列非常大的问题。作为患者,您需要接受教育手术如何在您的余生中对您影响,并务必向您的医生询问手术后一年内的期望,然后是一年,五年及以后。一定要为自己提倡!

如果你错过了IART 1:他们没有告诉女性关于结肠直肠手术的5件事**第3部分:Your Surgeon's Priorities Through Your Colorectal Surgery**Part 4:对自己的结肠直肠手术保持您的意见

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杰基·齐默曼

杰基·齐默曼is a multiple sclerosis and ulcerative colitis patient and the founder of Girls With Guts. Since diagnosis, she has blogged her IBD journey at Blood, Poop, and Tears. Jackie has worked hard to become a strong voice in the patient advocacy community. In her free time (what free time?!) she spends time with her two rescue pups, her husband Adam and plays roller derby. She’s online @JackieZimm.