MS组织:支持和患者计划

经过Lisa Emrich. Patient Advocate

此外MS organizations who are focused onresearchand注册管理机构, we have several organizations which offer support and services to folks affected by multiple sclerosis. The following provides an introduction to the services provided by the more prominent nonprofit organizations in the United States which serve on a national level.

国家多发性硬化学会

意味着罗女士一起生活ad to wellness is more than treatment of the disease. Equally important are health and wellness strategies, a strong support network of family and friends, satisfying work and leisure activities, a meaningful place in the community, and adequate attention to one's inner self.

国家MS社会为与MS的人士提供广泛的方案,服务和资源,包括家庭成员,护理人员和其支持系统的其他成员。当地社会章节计划因一个社区而异。要了解有关社区中提供的所有计划的更多信息,请联系您的章节

For the Newly Diagnosed:

一般信息:

。。。and MORE! VisitNMSS计划和服务了解更多信息。

多发性硬化基础

多发性硬化基础(MSF)是1986年成立的基于服务的非营利组织With national headquarters in Fort Lauderdale, Florida, the MSF serves the nation from one central location. Networking with independent, grassroots organizations gives us a local presence in communities around the nation. Funds raised by the MSF go directly into services designed to improve the quality of life for people with MS.

The Multiple Sclerosis Foundation provides a comprehensive approach to helping people with MS maintain their health and well-being. We offer programming and support to keep them self-sufficient and their homes safe, while our educational programs heighten public awareness and promote understanding about the disease.

Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals. Access to our programs and services is available through our interactive web site or our national, toll-free helpline staffed by caring caseworkers and peer counselors. Our priority is to serve with empathy, resourcefulness and responsibility.

免费提供所有MSF服务,以及我们出版物的信息,文学和订阅。一些计划是基于需求的,依赖收入和其他因素。MSF既不销售会员资格也不需要参加个人或支持群体的筹款活动。

广泛的patient services offered by MSFinclude:

支持计划:

Financial Programs:

美国多发性硬化症协会

美国的多发性硬化协会(MSAA)是一个国家非营利组织,致力于为受多发性硬化的每个人丰富生命质量。MSAA为这些个人提供了与MS和靠近他们的人的持续支持和直接服务。MSAA还旨在促进更加了解那些面临身体障碍的人的需求和挑战。

Since 1970, MSAA's philosophy and efforts have focused on improving the quality of day-to-day life, for everyone affected by MS. MSAA invites everyone within their community to join our cause - working together to break down barriers (physical, emotional, and social) and build up hope for those who are physically challenged.

虽然MSAA的国家办事处在整个美国提供客户,区域和外地办事处可以在本地和几个周围国家提供额外的援助。对任何MSAA活动感兴趣的个人可以联系他们最近的办公室以获取更多信息。

MS的效果从一个人到另一个人的效果广泛地变化,因此MS群体的需求是多种多样的。出于这个原因,MSAA提供了五类计划和服务,旨在向有MS,家庭及其护理合作伙伴提供个性化的援助。除了这些方案和服务之外,MSAA除了季刊杂志和其他文献提供有价值的信息。

MSAA offers the following programs and services:

MS World,Inc。

The primary mission of MSWorld, Inc., established in 1995 by MS patient Kathleen Wilson, is to end the isolation that people feel when diagnosed with a chronic illness, specifically multiple sclerosis - “Patients Helping Patients®.” MSWorld provides global Internet community support to people with multiple sclerosis. Our sole mission is to create a safe, informative, useful and fun place for people with MS to meet, share ideas and gain useful resources to keep them moving forward while living with MS.

MSWORLD,Inc。维护一个训练有素的志愿人员,以适度的实时聊天,留言板和其他资源,提供安全和有用的在线社区。在MSWORLD,我们对通过活跃社区,共享资源获得的生活质量感兴趣,以及使用新技术来帮助患有多发性硬化的人。

女士朋友

多年来,倡议由Ame MSFriendslia Davis, a person living with MS, provided peer-to-peer telephone support 24/7 to people with MS who needed to talk to someone. The National MS Society took over MSFriends and has incorporated it into their peer-to-peer programs. The tollfree helpline remains the same - 1-866-msfriends (1-866-673-7436) - but the hours may differ.

MS可以做(以前的Heuuga Center)

可以做MS,以前是Heuuga For Mored Saclerosis的中心,是一个创新的生活方式赋予MS和他们的支持合作伙伴的培养方案。一个国家非营利组织,我们赋予人们通过赋予他们的知识,技能,工具和信心来超越他们的MS超越健康的生活方式行为,积极共同管理他们的疾病并养活最好的生活。

Since 1984, we’ve been at the forefront of promoting the culture and belief that everyone living with MS has the power to live full lives. The organization has helped thousands of people living with MS transform challenges into possibilities in health and life. In 2008, we provided programs and services to more than 10,000 people.

可以做MS提供一系列个性化的经验​​学习格式,包括多日研讨会,周末研讨会,在线资源和对等支持程序。我们同情地用扩大的知识,技能,意识和自信来装备个人,成为他们健康的积极共同管理者。我们通过专注于与MS为生的身体,人际关系,情感,智力和精神方面来增强和补充传统的护理模型。

CAN DO MS有一个来自美国和加拿大周边的100多个医疗保健专业人士的网络,包括锻炼生理学家,营养学家,神经科学家,身体和职业治疗师,医生,心理学家,讲话/语言病理学家,注册护士和其他医疗专家。我们的医疗保健专业人员致力于教授MS及其支持合作伙伴的人,如何通过专注于他们可以做的事情来控制他们的生命和健康。2009年,可以做女士与国家多发性硬化社会形成合作伙伴关系,以对准资源,更有效地提高人士和他们的支持合作伙伴的人们的生活质量。

(updated July 2015)

遇见我们的作家
Lisa Emrich.

Living with multiple sclerosis and rheumatoid Arthritis, Lisa Emrich is an award-winning, passionate patient advocate, health writer, classical musician, and backroad cyclist. Her stories inspire others to live better and stay active. Lisa is author of the blog Brass and Ivory: Life with MS and RA and founder of the Carnival of MS Bloggers. Lisa frequently works with organizations in support of better policies, patient-centered research, and research funding. Lisa serves on HealthCentral’s Health Advocates Advisory Board, and is a Social Ambassador for the MSHealthCentral Facebook page.