与克罗恩一起旅行：如何管理从家里的IBD Flare
When some patients听到“旅行”的话和“IBD”他们想到了这个问题：“怎么样？”Since living on the Crohn’s-disease or ulcerative-colitis roller coaster isn’t easy, you like to be around your creature comforts — places and situations that make you feel comfortable — this way if, inflammatory bowel disease (IBD) were ever to strike, you won’t feel out of place.
But is that any way to live? You don’t want miss out on seeing new places or opportunities because of your IBD. I’ve always said that with the right planning and preparation, anything is possible, but I now know that this doesn’t just mean physically — it means mentally, too.
最近，我有一场旅行排队，在华盛顿州，D.C，然后在回家的路上参加费城的工作会议。由于这次旅行的大部分是为了工作，因此在我离开之前完成了我在办公室待办事项列表上的所有内容的压力。由于我们都知道压力会导致耀斑，这并没有帮助我的克罗恩。
One or two days before the trip, I started to feel a little weaker than normal, but nothing that was upsetting me yet. There were some common symptoms in my life, such as nausea and chronic pain, which I’ve sadly gotten used to, so I began packing and getting ready as normal. I even packed all of my cycling and running gear to train in both cities for my triathlons.
Everything was set and I thought I was ready for anything. But was I?
在五小时车骑行到D.C之后，我知道什么不对。我的身体感到沮丧，我难以保持水分，我知道我不得不把我的思想改为谨慎的模式。我应该吃什么？我不应该吃什么？我的水合计划是什么？我带来了我需要的一切吗？我的医生可以到达吗？正常的问题开始通过我的脑袋。
尽管如此，我不知道是什么领先于我和会发生的战斗。
第二天，我醒来在我朋友的位置，并知道事情正在下坡。我没有食欲，胃痛，是恶劣的，还有更多。耀斑开始了。我的第一个大约三年。恐慌模式？还没有。
I was prepared, so I called my doctor and asked him to call in a prescription for Prednisone to the nearest pharmacy. About an hour later, I had something to keep me out of the hospital. But it wasn’t over yet. For my Crohn’s it still takes 36 hours or so for the Prednisone to really kick in. I still had to be on alert.
自从我已经感觉不到，我决定每天早早去会议，并在我的酒店房间定居。这将是四天的回家，所以我认为在第一天驾驶的压力不会受伤。这样，我可以放松一下，并希望赶上我所需的身体。
第二天，我开始真正抬下坡。我的整个身体疼痛，我的造口术正在倾倒，这意味着每隔30分钟到浴室。这不会经常发生。事实上，我会说很少发生，但现在它正在道路上发生。是时候开始思考我应该做的事情。
Since the Prednisone obviously needed more time to work, I had to start laying out a plan and communicating my problem to those in my support network. Since I was now going to the bathroom every 15 to 30 minutes with my ostomy dumping, I couldn’t get in the car and drive back home. I couldn’t even be certain to make it from exit to exit. So, what did I do?
I began the process to get through the remainder of the trip and I was able to do it successfully, even though it wasn’t an easy few days, by any means.
以下是我在这次旅行中学到的一些事情以及如何处理在路上的耀斑。
沟通是关键
很难有时沟通你的IBD，这是正常的。但这不是让自己留给自己的时候。我担心叫亲人的人，让他们说：“我告诉过你，你不应该走了，”或者想象，如果我把自己放在这个位置，我必须让自己出去。
情况并非如此。我们需要让我们的损失ved ones and support network know what is going on. They have been there for you in the past for a reason. They understand IBD. They know it’s not your fault, sodon’t hesitate to reach out for help. They will be supportive and help you through the battle.
Medications
Your doctor might not always be available at a moment's notice. If you are going on a long trip or if you’re starting to feel a little off, make sure you have any medications that you might need ahead of time. If you know your IBD case well, you’ll be prepared and know what you need.
你想要的最后一件事就是离开家，不能与你的医生取得联系。所以要为任何事情做好准备。
医院
If you’re an educated and well-prepared patient, you’ll not only plan out your trip but also be ready for anything. This means knowing what hospital options you might have in the area and even doctors that might be a part of your care.
Don’t hesitate to call your own gastroenterologist and see if they know anyone in the area, if you’re afraid of what might happen if you have a flare away from home. Also, make sure you know if your insurance is accepted and will cover you at any hospital you might have to visit. The last thing you would want is a large cloud of debt hanging over your head because you didn’t know your care wouldn’t be covered.
Pharmacy Runs
When you have a flare on the road, the easiest thing to do to at least get things under control is to call your doctor and get a prescription called in that will help you. But it won’t end there, you will likely also make pharmacy runs to pick up other creature comforts.
在我最近的旅行中，当我爆发时，我不得不购买一系列的东西来将我的酒店房间变成一个个人空间，我可以舒服。这包括卡路里充足的摇晃，如确保或提升，泡菜可以帮助保留水合，过于反击的痛苦和发烧药物，风扇冷却我，加热垫，帮助痉挛，抗腹泻医学等等。
故事的寓意：知道当地的主要药房是在哪里，如果需要，可以准备好。
额外财政资源
你有多少次在路上，你的IBD开始耀斑，你不知道你如何负担得起必要的购买，因为你没有将这些费用建在您的预算中？
不要处理大量的痛苦和不适，因为你没有包括至少一些额外的资金来处理意外。无论你包装多少，当耀斑到达时，你可能会有可能需要的东西。确保不必强调要照顾好自己。
准备好和放松
In the end, we all need to travel from time to time. We can’t just sit in our homes the rest of our lives and not doing anything. Whether it be for work or pleasure, you will end up traveling at some point. And at that point you have to be ready and relaxed.
如果在旅行时发生了任何事情，你可以为你的IBD和心理健康做的最大的事情就是保持冷静，知道你已经准备好了。如果您准备好了，那么您的IBD可以抛出许多曲线球。虽然你可能无法击中Homerun，但是在用耀斑旅行时，我们想要拍摄的基本命中。
