8 UC患者透露他们的最好的建议Received

UC can be pretty hard on your gut, and during a flare-up, you often have to alter your diet, perhaps sticking to BRAT (Bananas, Rice, Applesauce, Toast). So when in remission, celebrate by eating things that make you happy and just taste really good. Says Lucia Quadraruopolo: “Eat that ice cream if you’re craving it!”

Being an ostomate often comes with a learning curve. Find fellow ostomates and ask their advice about living with an ostomy, specific appliances, and other tricks that will make your life a whole lot easier!

Having a chronic illness can be exhausting. Take the time you need to rest and be at your best. It can be terribly disappointing to have to stay in and/or cancel plans with your friends, but taking care of yourself really should be your number one priority.

Being your own advocate is one of the most important things you can do for yourself as someone with a chronic condition like UC. Don’t be shy when talking to your doctors: Ask as many questions as you have, and tell them honestly how you feel about the care you’re getting. Remember: It’s OK to get a second opinion. As Emily Whitaker Cox reminds us, “Doctors don't have all the answers. You have to figure out some things on your own.” For example, certain treatments may not jive with your body and your lifestyle. And that's OK; you just have to speak up.

Check out thesetips from veteran IBD-ers on how to advocate for yourself.

Living with IBD can affect your whole body — and that includes yourmental health也这就是为什么在你的生活中发现轻浮是特别重要的…这可以包括嘲笑自己。尴尬时刻？搞笑！幽默可以治愈疾病，更不用说它可以解除人们的武装，所以你最终可能会让别人看到你正在经历的事情，并进一步打破UC的耻辱感。以健康中心作家曼迪·摩根（Mandy Morgan）为例，她患有UC——在她最终遇到的一种情况中，有一种与生俱来的幽默感：在结肠镜检查的同一天快速约会.

Living with IBD can affect your whole body, but remember that it can also affect your mental health, too. Living with a chronic illness can be stressful and difficult to manage alone, so it’s important to seek support and help when you need it.A healthy mind promotes a healthy body.

You did不cause your IBD. Doctors are currently unaware of the root causes of IBD but it has been proven that it is not the food you ate last week, nor is it something you have chosen for your life.Free yourself of any guiltthat may come along with your diagnosis.

Here’s some advice from me: It’s important to get educated on UC. Science is ever-changing, and it’s no different in the IBD world. There are new tests, medications, and procedures being created all the time. Be sure to stay up-to-date on the latest happenings in the IBD world, and find a doctor who is on the same page about your treatment goals.

AUC的诊断可能是压倒性的, but just remember that there are millions of patients out there (follow our favorite UC Instagrammers!) and numerousIBD组织eager to help you on your journey. As someone who has lived with UC for years, take it from me: Never be afraid to ask for advice, and be generous with your own wisdom when anyone asks for it.